PMI

I wrote a huge ranty post and deleted it as soon as I read it. I had taken exception to something someone said to me, an innocent comment which I had blown out of proportion. The rant, I still feel, was justified on the basis that people should give more thought to the person receiving these flippant remarks. What is said in a moment of not knowing what to say awkwardness can have lasting and painful effects. I’m pretty tough these days, most things are like water off a ducks back to me, but sometimes those remarks sting just a bit. And if you allow them to, they eat away at you until you are making ranty posts about it on your blog. For the record, I am not in any way grateful that I only have Parkinson’s Disease, and I don’t need to be reminded that there are people worse off than me. It doesn’t make me, or them, feel any better having you helpfully point that out… And that was me not ranting…

I am trying to find reasons to be positive today. Tom saw his consultant this afternoon. They are struggling to control his symptoms and want him to take two more medications on top of everything he already takes. He has to go in for more investigations and possibly IV infusions as well as everything else. He is taking it all in his stride. I however, am left with an overwhelming feeling of sadness that at 19, when he should be enjoying the freedom that comes with early adulthood and uni life, this is what his life has become. The positive voice in my head would remind me that at least he is being closely monitored and they seem to be doing everything they can and should be. For the record, I don’t actually hear voices… What did you say?!

My dad saw his consultant today too. Fortunately he is doing brilliantly after his surgery. So well that they don’t want to see him again for 6 weeks. He got a telling off for doing too much but if he lays off the star jumps he should be fine… he is fine and that makes my heart happy. And I am joking, of course he’s not doing star jumps 2 weeks after open heart surgery… that would be crazy, wouldn’t it dad?!

It’s Christmas jumper day tomorrow. When did that become a thing?! We can wear Christmas t-shirts at work tomorrow. The boys can wear Christmas jumpers for a small fee to raise money for Save the Children. Joseph has deemed it ‘lame’ and won’t be wearing one. Sam hasn’t mentioned it. It’s not the norm so he won’t be keen. Or he might wait until 08.30 and suddenly decide he absolutely must wear a Christmas jumper. The distinct lack of Christmas jumpers in the Gill household could present a problem in that case…